My mom has had a recurrence. The doctor is talking parp-inhibitors in a carboplatinum sensitive person. Anyone here doing parp-inhibitors? They seem amazing.
Hi Singsongy, Yes I agree the parp-inhibitors are amazing. I was part of a trial in Sydney and I was on Olaparib and I tolerated it very well,the side effects are not as nasty as chemo! It was good being on the trial as I met lots of other women doing the same journey with the parp-inhibitors. Some of them had been on them for 2 0r 3 years. I was on the trial for 18 months and it was good to be cancer and chemo free for that time. Unfortunately I had to come off the trial as my marker started to go up and there were strict parameters regarding the trial. I am now just completing a regime of chemo. That was about 9 months ago and the trial is still going and is very successful for lots of women. I hope your Mum can have a successful journey with the parp-inhibitor. Which one is she on? Take care Helen
Hi Singsong again, I forgot to mention that there is also a great webinar on Parp inhibitors at https://ovariancancer.net.au/webinar-category/treatment/" that you might be interested in. Helen
Hi there, I am catching up on this site as I haven't visited for a while. I initially had chemo, which didn't work...so I started on a PARP inhibitor trial earlier this year in May...the trial worked for approx. 6 months where one of my tumours shrunk and the other one completely disappeared...unfortunately I have more tumours growing and have just started on an immunotherapy trial...hoping your Mum has success!
Hi Lisa, I am interested in the immunotherapy trial, what does it involve? Helen
Hi Helen, sorry, I've only just gotten back on this site today...I started on an immunotherapy trial mid November and have so far had two infusions. It is a very new drug, only started being trailed in the past few months and is a first in human studies trial. It doesn't seem to have the side effects that chemo does, but having said that, this past week since my second infusion I haven't been feeling great...but I sort of wonder whether that is because of the busy-ness of the season, the immunotherapy or the cancer. I have also had a friend die just this week after a long battle with breast cancer and that has thrown me...I will have a CT scan in a couple of weeks which will hopefully show some shrinkage of the tumours. Hope this answers your question. Have a Happy New Year
Hi Lisa, thanks for getting back to me. How are you feeling now that Christmas is behind us? Are you doing the trial in Melbourne or Sydney? I am sorry to hear about your friend, it does tend to affect us more than we think. Take care and you also have a happy new year. Helen