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        <title>Inspiration — OCA Connect Online Community</title>
        <link>https://forum.ovariancancer.net.au/</link>
        <pubDate>Wed, 24 Feb 2021 22:14:08 +0000</pubDate>
        <language>en</language>
            <description>Inspiration — OCA Connect Online Community</description>
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        <title>Low grade serous</title>
        <link>https://forum.ovariancancer.net.au/discussion/16985/low-grade-serous</link>
        <pubDate>Fri, 20 Mar 2020 06:33:28 +0000</pubDate>
        <category>Recurrence</category>
        <dc:creator>suelm</dc:creator>
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        <description><![CDATA[<p>Is anyone else grappling with low grade serous ovarian cancer? </p><p>Thanks Sue ❤️</p>]]>
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    <item>
        <title>5 years cancer free today</title>
        <link>https://forum.ovariancancer.net.au/discussion/16258/5-years-cancer-free-today</link>
        <pubDate>Tue, 02 Jul 2019 13:09:23 +0000</pubDate>
        <category>Welcome &amp; Orientation</category>
        <dc:creator>RachelGT</dc:creator>
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        <description><![CDATA[<p>Hi all</p><p><br /></p><p>I am five years cancer free today!</p><p><br /></p><p>I am so grateful to my medical team and the support of OCA. Here&#39;s to the next five.</p><p><br /></p><p>Best wishes</p><p><br /></p><p>Rachel</p>]]>
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    </item>
    <item>
        <title>Hello everyone - will soon start chemotherapy</title>
        <link>https://forum.ovariancancer.net.au/discussion/12095/hello-everyone-will-soon-start-chemotherapy</link>
        <pubDate>Tue, 19 Dec 2017 17:07:15 +0000</pubDate>
        <category>Newly Diagnosed</category>
        <dc:creator>anne</dc:creator>
        <guid isPermaLink="false">12095@/discussions</guid>
        <description><![CDATA[<p>Hi to all</p><p><br /></p><p>I am Anne and I recently had a surgery and will start chemotherapy this Thursday. I want to try to get support from you ladies who know what I am going through. It has been a tough 5 weeks for me after being diagnosed with ovarian cancer stage 1c. I try my best to see the light in this but sometimes I feel so sad and alone and mostly scared now that treatment will start. It is nice to hear inspirational stories from all of you and I pray that my treatment will be kind to me . Appreciate any helpful tips that I can do before I start this Thursday .</p><p><br /></p><p>Thank you.&nbsp;</p>]]>
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    </item>
    <item>
        <title>What a journey!</title>
        <link>https://forum.ovariancancer.net.au/discussion/16138/what-a-journey</link>
        <pubDate>Mon, 10 Jun 2019 08:40:10 +0000</pubDate>
        <category>Welcome &amp; Orientation</category>
        <dc:creator>julesCWA</dc:creator>
        <guid isPermaLink="false">16138@/discussions</guid>
        <description><![CDATA[<p>Hi, I was diagnosed with Stage 4 Ovarian Cancer in July 2017.&nbsp; I completed 36 infusions of chemo and five surgeries and I am now NED.&nbsp; I am so grateful.&nbsp; I have a rare Ovarian Cancer presentation.&nbsp; I had no cancer in my Ovaries or anywhere in my reproductive organs.&nbsp; My cancer was near my pancreas, liver and stomach.&nbsp; In lymph nodes only.&nbsp; It still bewilders me that I had Ovarian Cancer Stage 4 and no symptoms.&nbsp; My GYN Surgeon also said my Ovaries were pristine so there had been no cancer there previously. She would say I was complex, unique and complicated regarding my cancer.&nbsp; I am just so happy to alive.</p>]]>
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    </item>
    <item>
        <title>Dear Cancer...</title>
        <link>https://forum.ovariancancer.net.au/discussion/10158/dear-cancer</link>
        <pubDate>Wed, 26 Apr 2017 22:18:44 +0000</pubDate>
        <category>'The New Normal' - Living Well after a cancer diagnosis</category>
        <dc:creator>Sirin</dc:creator>
        <guid isPermaLink="false">10158@/discussions</guid>
        <description><![CDATA[<p>The moment of my diagnosis saw my future totally black out in my mind. I was in this state for a number of mins until I consciously made a decision that I would fight with all I have to win this fight and that I would do so by remaining positive, hopeful and strong. The next four months were challenging but I made a conscious effort to always look for the silver lining and remain open to what I was to learn from this experience. Soon after my treatment ended I found myself writing a letter to Cancer; here is how it reads:</p><p>Dear Cancer,</p><p><br /></p><p>I write to you in disbelief and a level of denial that my life has crossed paths with you. Like most people who have met you, your presence was never welcome nor enjoyed but the life-changing lessons you left behind were amazing. It is for this reason I want to say thank you for teaching me....</p><p><br /></p><p>The true meaning of life;</p><p><br /></p><p>That my children are my life&#39;s most rewarding blessing;</p><p><br /></p><p>That my husband and I are true soulmates and how blessed we are to be together</p><p><br /></p><p>That no matter what family is the biggest gift we are all given</p><p><br /></p><p>That our achievements are own but the impact they have on others are our true legacy</p><p><br /></p><p>How to immerse myself in each moment, giving it my full attention and care;</p><p><br /></p><p>To be resilient in the toughest of times no matter how weak I feel</p><p><br /></p><p>That I possess an inner strength ready to fight any challenge</p><p><br /></p><p>Fear is a waste of precious energy and time and giving me new perspective and ability to not sweat the small stuff;&lt;</p><p><br /></p><p>To celebrate the smallest of wins and graciously take ownership for them because I deserve to;</p><p><br /></p><p>To find pleasure in the simplest of beauties in life and to bask in the most glorious of them all</p><p><br /></p><p>To re-connect with me and live my own truth</p><p><br /></p><p>I am enough just as I am;</p><p><br /></p><p>I have survived your ferocity and pray that others who meet you are as fortunate I In the meantime passing forward my lessons, I hope will show, that you have nothing on the human spirit and matter how hard you try that spirit will overcome you!&nbsp; Sirin</p><p><br /></p><p>&nbsp;</p><p><br /></p><p>Putting my learnings in words directed to that very challenge was a very empowering experience. Prior to writing this letter, I had trouble using the words &#39;I&#39; and &#39;Cancer in the same sentence, now 10 months into remission I call my safe a Cancer Survivor and do so with great pride and gratefully. I invite your comments or even better your own letter to Cancer so that we can pay forward our learnings with others in similar circumstances.</p>]]>
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    <item>
        <title>A New You</title>
        <link>https://forum.ovariancancer.net.au/discussion/9725/a-new-you</link>
        <pubDate>Tue, 14 Feb 2017 14:03:20 +0000</pubDate>
        <category>Younger Women</category>
        <dc:creator>Nikki</dc:creator>
        <guid isPermaLink="false">9725@/discussions</guid>
        <description><![CDATA[<p>My first diagnosis was about 7 years ago. &nbsp;I was 30 and just gave birth to my son. &nbsp;Since then my life has turned into a series of doctors appointments, scans and surgery. &nbsp;When you are diagnosed with cancer your life changes dramatically and you develop a new way of looking at yourself and the world.</p><p><br /></p><p>You feel like your body has turned on you. &nbsp;Suddenly you&#39;re going through menopause and have more in common with women twice your age. &nbsp;When people find out what you have been through they are shocked and horrified because you are so young. &nbsp;Prepare yourself for sympathetic looks and comments from strangers.</p><p><br /></p><p>Even though you feel like you are going through a never ending hell, there are positives. &nbsp;People will realise you are one of the toughest people they will ever meet. &nbsp;Not much will upset you, life&#39;s small things take on a different perspective and you learn to make the most of life while you can.</p><p><br /></p><p>Keep wearing bikinis, your scars are impressive.</p><p><br /></p><p>If it makes you happy, do it.</p><p><br /></p><p>If you want those shoes, buy them.</p><p><br /></p><p>Nikki</p>]]>
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    <item>
        <title>Hi- I am Joy</title>
        <link>https://forum.ovariancancer.net.au/discussion/12910/hi-i-am-joy</link>
        <pubDate>Wed, 11 Apr 2018 20:07:03 +0000</pubDate>
        <category>Welcome &amp; Orientation</category>
        <dc:creator>JoyB</dc:creator>
        <guid isPermaLink="false">12910@/discussions</guid>
        <description><![CDATA[<p>Hi, I&#39;m Joy and like my name I am generally happy and positive.&nbsp; I was diagnosed by accident with very early stage Ovarian Cancer in June 2016.&nbsp; During the surgery it was found that the cancer had actually spread to the fallopian tube but not beyond.&nbsp; After surgery, I completed a course of chemotherapy to &quot;mop up&quot; any malignant cells that may be lurking and it was with confidence I looked forward to the future.&nbsp; 7 months later I was rediagnosed with Metastatic Cancer and entered into Chemotherapy again.&nbsp; After my initial tears and a few temper tantrums I decided that I wasn&#39;t helping myself by focusing on the what if or thinking about all the things (particularly relating to my Grandchildren) that I would miss.&nbsp;&nbsp; So here are a few things I have found that have helped me:</p><p><br /></p><p>1) If my cancer had not been found in what was thought to be a healthy ovary at such an early stage my outcome would not have been as positive.&nbsp; I feel blessed to have had extended time with my family.</p><p><br /></p><p>2) I no longer work due to fatigue from chemo etc but find I am busier than ever.&nbsp; It might take me 3 times as long to do something but I feel great when I have managed a task.</p><p><br /></p><p>3) Although there are some confronting discussions that have had to be had, I don&#39;t dwell on the future too much as I find worrying about the future robs me of pleasure in the present. Equally I am not stressing about things I cannot change from the past.</p><p><br /></p><p>4) I am not perfect -far from it and every now and again I have a pyjama day but mostly I try to make sure that each day I have at least one thing that gives me a reason to I get out of bed, get dressed and face the world.&nbsp; It is too easy to give into the negative path or thoughts can take us.&nbsp; I also put news of cancer breakthoughs etc in prominent places to remind me that I just need to stay healthy and contain the tumours until the breakthrough in Ovarian Cancer gives me another positive option.</p><p><br /></p><p>So that&#39;s a little about me, I hope I haven&#39;t waffled too much</p>]]>
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    </item>
    <item>
        <title>HELEN</title>
        <link>https://forum.ovariancancer.net.au/discussion/13335/helen</link>
        <pubDate>Thu, 07 Jun 2018 21:32:09 +0000</pubDate>
        <category>Welcome &amp; Orientation</category>
        <dc:creator>HealthyNow</dc:creator>
        <guid isPermaLink="false">13335@/discussions</guid>
        <description><![CDATA[<p>Helen,</p><p><br /></p><p>I lost our thread.</p><p><br /></p><p>I will not have chemo or blood work till June 15, 16.</p><p><br /></p><p>Longest I have been without treatment since 10/13/2016.</p><p><br /></p><p>No blood stick this Friday either - thrilled about this.</p><p><br /></p><p>Going on a church retreat this weekend.</p><p><br /></p><p>Very unhappy at work - my contract was not renewed and I suspect these people are the tackiest on the Earth when it comes to managing foreign teachers.</p><p><br /></p><p>Day at a time with this roller coaster.</p><p><br /></p><p>Enjoy your short trip.</p><p><br /></p><p>Sandra</p>]]>
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    <item>
        <title>response to Helen Chinese Medicine after treatment</title>
        <link>https://forum.ovariancancer.net.au/discussion/11496/response-to-helen-chinese-medicine-after-treatment</link>
        <pubDate>Thu, 07 Sep 2017 21:18:43 +0000</pubDate>
        <category>Welcome &amp; Orientation</category>
        <dc:creator>HealthyNow</dc:creator>
        <guid isPermaLink="false">11496@/discussions</guid>
        <description><![CDATA[<p>HELEN - A Cruise - you lucky girl you! &nbsp;Sounds divine. &nbsp;I will look up your travel route on Google maps. &nbsp;Yay on you for finishing your chemo. &nbsp;You may not have ovarian cancer and peritoneum cancer. &nbsp;My friend has ovarian state 4A and she is 3 years chemo free with one year of treatment, surgery, blood transfusion. &nbsp;She did not have peritoneum cancer. &nbsp;She was not familiar with peritoneum cancer. &nbsp;My challenge is the peritoneum part of my cancer. &nbsp;The doctors have never said ovarian cancer metasticized to the peritoneum - they simply say ovarian and peritoneum cancer. &nbsp;This is all leading up to the answer to your question that no I am not finished with treatment and will not know if the new paclitaxel/carboplatin increased to 175 dose is working. &nbsp;So...I cannot book an airline ticket until I get a better picture of what might be in February 2018. &nbsp;But GREAT idea to do so to have something to look forward to. &nbsp;I am actually using this strategy for my weekend b/c next weekend I am back in overnight for a 12 hour chemo. &nbsp;Tonight I discovered that I have lost my Visa card. &nbsp;So, original plan bagged. &nbsp;But bicycled home, grabbed a Cliff bar birthday present mailed to me and opened yesterday, a banana, my water bottle, and a bag of bread and bicycled back to the park feeding the ducks and getting in a short mountain hike on a lighted path. &nbsp;Saturday I see the Chinese Med Dr and then will be foot loose and fancy free - hopefully for more hiking. &nbsp;Write soon. &nbsp;Sandra</p>]]>
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    <item>
        <title>Hi Helen</title>
        <link>https://forum.ovariancancer.net.au/discussion/12293/hi-helen</link>
        <pubDate>Mon, 22 Jan 2018 16:18:45 +0000</pubDate>
        <category>Welcome &amp; Orientation</category>
        <dc:creator>HealthyNow</dc:creator>
        <guid isPermaLink="false">12293@/discussions</guid>
        <description><![CDATA[<p>Thanks for your note Helen.&nbsp; I wanted to share my good news - a donor has given six thousand dollars so that I may have my first 3 rounds of avastin here in Taiwan.&nbsp; I have scans Saturday morning for liver, kidneys, bowels, stomach, lungs to see what the cancer is doing - I was thrilled I did not have to take off today - labor laws changed and scans were only being done for emergency patients.&nbsp; This influx of funds has given me hope - I will not have to have the 5 day inpatient chemo.&nbsp; Yet.&nbsp; I hope your carboplatin drips go ok and you continue to walk your dog and eat chocolate.&nbsp; I am slow cooking at school - today pork, bok choy and corn.&nbsp; Enjoying our 65 degree weather.&nbsp; Completing online classes to renew my teaching license.&nbsp; Unfortunately I will not be making plans for sailing this summer until some kind of resolution is reached regarding my health.&nbsp; I had a lovely hike a week ago and was able to go to a birthday party last night, and go to church.&nbsp; Yay.&nbsp; x S</p>]]>
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    <item>
        <title>Noddy17</title>
        <link>https://forum.ovariancancer.net.au/discussion/12231/noddy17</link>
        <pubDate>Mon, 15 Jan 2018 19:12:51 +0000</pubDate>
        <category>Welcome &amp; Orientation</category>
        <dc:creator>Noddy17</dc:creator>
        <guid isPermaLink="false">12231@/discussions</guid>
        <description><![CDATA[<p>hello my name is Gail Osbourne and I was diagnosed with stage 3 ovarian cancer in March 17. Finished my chemo on Sept 1 17. Looking forward to hearing about your journeys as we face positivity after diagnosis</p>]]>
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    </item>
    <item>
        <title>Hi from Margaret</title>
        <link>https://forum.ovariancancer.net.au/discussion/12226/hi-from-margaret</link>
        <pubDate>Sun, 14 Jan 2018 16:22:12 +0000</pubDate>
        <category>Welcome &amp; Orientation</category>
        <dc:creator>mamamarg</dc:creator>
        <guid isPermaLink="false">12226@/discussions</guid>
        <description><![CDATA[<p>Hi,</p><p><br /></p><p>I&#39;m Margaret, retired nurse and midwife, diagnosed with Stage 4 , or so I&#39;m told, Sept 2014. I thought my life had ended, but it&#39;s now 2018, and I&#39;m still alive and kicking and keeping very busy</p>]]>
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