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        <title>Recovery — OCA Connect Online Community</title>
        <link>https://forum.ovariancancer.net.au/</link>
        <pubDate>Wed, 24 Feb 2021 21:34:01 +0000</pubDate>
        <language>en</language>
            <description>Recovery — OCA Connect Online Community</description>
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        <title>OCA- Teal Support Program</title>
        <link>https://forum.ovariancancer.net.au/discussion/16995/oca-teal-support-program</link>
        <pubDate>Wed, 20 May 2020 05:33:05 +0000</pubDate>
        <category>General</category>
        <dc:creator>admin</dc:creator>
        <guid isPermaLink="false">16995@/discussions</guid>
        <description><![CDATA[<p>If you are a woman living with ovarian cancer and would like access to your own ovarian cancer support nurse, then we encourage you to join the Teal Support Program.&nbsp;The Teal Support Program is the embodiment of Ovarian Cancer Australia&rsquo;s vision that no woman with ovarian cancer walks alone.</p><p>Your ovarian cancer nurse will be able to relay information to your medical team and gain guidance for you about the best way to support and treat you.&nbsp;</p><p>To join the Teal Support Program or for further information, please contact an ovarian cancer nurse on 1300 660 334 or email <a href="mailto:care@ovariancancer.net.au" rel="nofollow">care@ovariancancer.net.au</a>.</p><div data-embedjson="{&quot;body&quot;:&quot;If you have already entered your email address and created a password while completing a form within our site, it is likely you have an account. You should have received an email to confirm this.&quot;,&quot;url&quot;:&quot;https:\/\/www.ovariancancer.net.au\/page\/97\/teal-support-program&quot;,&quot;embedType&quot;:&quot;link&quot;,&quot;name&quot;:&quot;\r\n\tOvarian Cancer Australia - Teal Support Program\r\n&quot;}">
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        https://www.ovariancancer.net.au/page/97/teal-support-program
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</div><p><br /></p><p>Thank you</p>]]>
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    <item>
        <title>EXPRESSIVE WRITING</title>
        <link>https://forum.ovariancancer.net.au/discussion/15709/expressive-writing</link>
        <pubDate>Thu, 28 Mar 2019 14:12:32 +0000</pubDate>
        <category>'The New Normal' - Living Well after a cancer diagnosis</category>
        <dc:creator>chrishayward</dc:creator>
        <guid isPermaLink="false">15709@/discussions</guid>
        <description><![CDATA[<p>Hi everyone,</p><p><br /></p><p>I am hoping that under this&nbsp; thread Expressive Writing that you can post any poetry or expressions that you felt at the time of your diagnosis and afterwards. This will be a great chance for you to voice how you felt.</p><p><br /></p><p>This is one I wrote when I was first diagnosed:</p><p><br /></p><p>LET YOUR TEARS FALL</p><p><br /></p><p>Don&#39;t let anyone ever tell you, do not cry</p><p><br /></p><p>For they have never felt the pain and devastation of being diagnosed with a Cancer or disease that can take their life</p><p><br /></p><p>Let Your Tears Fall</p><p><br /></p><p>We all have triggers that bring the tears</p><p><br /></p><p>The fears to the surface</p><p><br /></p><p>We all fear what the future hold</p><p><br /></p><p>Let Your Tears Fall</p><p><br /></p><p>They give us the release we need</p><p><br /></p><p>The solace we seek</p><p><br /></p><p>Never be afraid to,</p><p><br /></p><p>Let Your Tear Fall</p><p><br /></p><p>&nbsp;</p><p><br /></p><p>&nbsp;</p>]]>
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        <title>Melbourne Forum</title>
        <link>https://forum.ovariancancer.net.au/discussion/16963/melbourne-forum</link>
        <pubDate>Mon, 03 Feb 2020 02:20:31 +0000</pubDate>
        <category>General</category>
        <dc:creator>admin</dc:creator>
        <guid isPermaLink="false">16963@/discussions</guid>
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<p>Ovarian Cancer Australia, Counterpart and Mercy Health are excited to announce a free &ldquo;Living with cancer and wellbeing&rdquo; day for women with, or following, a gynaecological cancer diagnosis. The event will be held on the 3rd of March at Mercy Hospital, Heidelberg VIC where you will have the opportunity to:</p><p>- Learn from psychologists about ways that may help improve how you feel</p><p>- Connect with other women who have experienced a gynaecological cancer</p><p>- Try wellbeing activities with experienced practitioners including yoga and art therapy.</p><p>To register, please follow the link: <a href="https://www.eventbrite.com.au/e/a-free-living-with-cancer-and-wellbeing-day-tickets-88598138417" rel="nofollow">https://www.eventbrite.com.au/e/a-free-living-with-cancer-and-wellbeing-day-tickets-88598138417</a></p><p>Or call 1300 660 334</p>]]>
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        <title>Anyone had HIPEC?</title>
        <link>https://forum.ovariancancer.net.au/discussion/11719/anyone-had-hipec</link>
        <pubDate>Tue, 24 Oct 2017 13:38:15 +0000</pubDate>
        <category>Welcome &amp; Orientation</category>
        <dc:creator>LucyZ</dc:creator>
        <guid isPermaLink="false">11719@/discussions</guid>
        <description><![CDATA[<p>Hi everyone</p><p><br /></p><p>Just wondering if anyone here has had HIPEC Hyperthermic intraperitoneal chemotherapy - hot chemo in the abdominal cavity)&nbsp;for OC that&#39;s spread?&nbsp; I&#39;ll be having&nbsp;cytoreduction surgery and HIPEC at the Peter Mac sometime before the end of the year, and am wondering if anyone has tips for getting through it better, and for recovery?</p><p><br /></p><p>Take care</p><p><br /></p><p>Lucy</p><p><br /></p><p>&nbsp;</p>]]>
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        <title>Travel Insurance</title>
        <link>https://forum.ovariancancer.net.au/discussion/12666/travel-insurance</link>
        <pubDate>Fri, 23 Feb 2018 13:00:35 +0000</pubDate>
        <category>Welcome &amp; Orientation</category>
        <dc:creator>nellie63</dc:creator>
        <guid isPermaLink="false">12666@/discussions</guid>
        <description><![CDATA[<p>Hi</p><p><br /></p><p>My name is Cherie and I was wondering if anyone has had success getting travel insurance??</p>]]>
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        <title>Noddy17</title>
        <link>https://forum.ovariancancer.net.au/discussion/12231/noddy17</link>
        <pubDate>Mon, 15 Jan 2018 19:12:51 +0000</pubDate>
        <category>Welcome &amp; Orientation</category>
        <dc:creator>Noddy17</dc:creator>
        <guid isPermaLink="false">12231@/discussions</guid>
        <description><![CDATA[<p>hello my name is Gail Osbourne and I was diagnosed with stage 3 ovarian cancer in March 17. Finished my chemo on Sept 1 17. Looking forward to hearing about your journeys as we face positivity after diagnosis</p>]]>
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        <title>My Top Tips</title>
        <link>https://forum.ovariancancer.net.au/discussion/8776/my-top-tips</link>
        <pubDate>Sun, 02 Oct 2016 08:52:29 +0000</pubDate>
        <category>Newly Diagnosed</category>
        <dc:creator>Nikki</dc:creator>
        <guid isPermaLink="false">8776@/discussions</guid>
        <description><![CDATA[<p>I&#39;d like to thin I&#39;m a bit of an expert at recovering from surgery, I always manage to get out of hospital before my doctor&#39;s predicted date.</p><p><br /></p><p>Here are my tips for surgery:</p><p><br /></p><p>1. &nbsp;Walk, walk, walk. &nbsp;As soon as you can get out of that bed and walk. &nbsp;You can feel yourself healing.</p><p><br /></p><p>2. &nbsp;Do your breathing and coughing exercises after surgery. &nbsp;They hurt but are worth it.</p><p><br /></p><p>3. &nbsp;Take your own pillow!!! &nbsp;Hospital pillows are hideous.</p><p><br /></p><p>4. &nbsp;Find a good belly pillow. &nbsp;If you need to cough of sneeze, hold this against your belly for support. &nbsp;If you need to lie on your side, put it under your belly for support like when you were pregnant.</p><p><br /></p><p>5. &nbsp;Posture! &nbsp;As soon as you sit up, roll your shoulders back and keep your back straight. &nbsp;You automatically slouch after surgery and if you do this you will have back problems.</p><p><br /></p><p>6. &nbsp;Invest in heat packs. &nbsp;You&#39;ll need them because your back and stomach muscles are going to be sore</p><p><br /></p><p>7. &nbsp;Research good scar treatment creams and gels. &nbsp;When everything has healed, start treating your scars as soon as possible to soften them and minimise pulling.</p><p><br /></p><p>8. &nbsp;As soon as you&#39;re recovered take up something like yoga or Pilates to build up your core strength and develop impressive abs.</p><p><br /></p><p>9. &nbsp;And keep walking.</p><p><br /></p><p>Thats all I can think of now.</p><p><br /></p><p>Nikki</p><p><br /></p><p>&nbsp;</p>]]>
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        <title>Hi from Margaret</title>
        <link>https://forum.ovariancancer.net.au/discussion/12226/hi-from-margaret</link>
        <pubDate>Sun, 14 Jan 2018 16:22:12 +0000</pubDate>
        <category>Welcome &amp; Orientation</category>
        <dc:creator>mamamarg</dc:creator>
        <guid isPermaLink="false">12226@/discussions</guid>
        <description><![CDATA[<p>Hi,</p><p><br /></p><p>I&#39;m Margaret, retired nurse and midwife, diagnosed with Stage 4 , or so I&#39;m told, Sept 2014. I thought my life had ended, but it&#39;s now 2018, and I&#39;m still alive and kicking and keeping very busy</p>]]>
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    <item>
        <title>Lyn</title>
        <link>https://forum.ovariancancer.net.au/discussion/11972/lyn</link>
        <pubDate>Tue, 21 Nov 2017 13:49:11 +0000</pubDate>
        <category>Welcome &amp; Orientation</category>
        <dc:creator>LynMcVicar</dc:creator>
        <guid isPermaLink="false">11972@/discussions</guid>
        <description><![CDATA[<p>Hi Everyone,</p><p><br /></p><p>My name is Lyn and I was diagnosed in Feb this year I guess we mostly have the same story with symptoms. I did go to my Urogynecologist for urine urgency I had had an earlier mesh repair done and had good results, but two years later just didn&#39;t feel right. &nbsp;She checked everything out and said it was all good. &nbsp;I wonder now if I should ring her so maybe she could do some other tests. I have completed surgery and chemo. &nbsp;I thought surgery was bad, but chemo was worse. &nbsp;Just getting my hair back and I love it, I didn&#39;t feel right with a wig and scarves were hard to tie. &nbsp;I did go a little bogan and wore a lovely merino and possum beanie my sister bought for me in NZ. I am in Lorn NSW if anyone wants to call in for coffee. &nbsp;Cheers :yn</p>]]>
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    <item>
        <title>Hair again!</title>
        <link>https://forum.ovariancancer.net.au/discussion/12041/hair-again</link>
        <pubDate>Tue, 05 Dec 2017 16:57:19 +0000</pubDate>
        <category>Welcome &amp; Orientation</category>
        <dc:creator>LynnatCamelot</dc:creator>
        <guid isPermaLink="false">12041@/discussions</guid>
        <description><![CDATA[<p>Thanks for remembering me, Helen.&nbsp; Now that I get treated only every 3 weeks, we dashed away to King Valley with friends and also to the coast at Tabourie Lake, so I haven&#39;t been keeping up with the forum.</p><p><br /></p><p>At last my eyelashes grew back, but the hair seems very slow.&nbsp; I always had baby fine hair.&nbsp; It looks darker and is only about an inch long, so I still wear headwear as my ears seem to stick out. (Not used to seeing them!)&nbsp; I used to have a jaw-length bob.&nbsp; Such a pain trying to match headwear to my outfits.&nbsp; But when I think about it I used to get it trimmed about every 8 weeks about an inch, so it will take months to look decent.&nbsp; I had a 75th birthday recently and very short is not a good look on me!</p><p><br /></p><p>Hope you are getting encouraging results from your treatment.</p><p><br /></p><p>&nbsp;</p>]]>
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    <item>
        <title>Sirin</title>
        <link>https://forum.ovariancancer.net.au/discussion/10110/sirin</link>
        <pubDate>Sat, 22 Apr 2017 20:40:07 +0000</pubDate>
        <category>Welcome &amp; Orientation</category>
        <dc:creator>Sirin</dc:creator>
        <guid isPermaLink="false">10110@/discussions</guid>
        <description><![CDATA[<p>Hi all, I&#39;m Sirin. I was diagnosed with a Stage 2, Grade 3 Immature Teratoma a.k.a Germ Cell Tumor. My Tumor was 20cm when it was removed a week after my diagnosis, followed by a staging laparotomy two weeks aafter that. This was followed by&nbsp;3 rounds of chemo. Fortunately I have been in remission for 10mths but am still dealing with long term affects of the chemo and extensive surgeries I had.</p><p><br /></p><p>I have learnt a lot about myself along this journey and still am everyday as I push through the pain of recovery. I would love to share this journey with anyone who would like to do the same :)</p>]]>
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        <title>Hiya, I'm Sirin</title>
        <link>https://forum.ovariancancer.net.au/discussion/9178/hiya-im-sirin</link>
        <pubDate>Thu, 01 Dec 2016 15:22:10 +0000</pubDate>
        <category>Welcome &amp; Orientation</category>
        <dc:creator>Sirin</dc:creator>
        <guid isPermaLink="false">9178@/discussions</guid>
        <description><![CDATA[<p>I was diagnosed and treated for an immature teratoma&nbsp;or a 20cm germ cell tumor. I had surgery to first remove the tumor then for staging. I did 3 rounds of chemo and am blessed to know that I am now in remission and disease free. However, as I am sure many of you know recovering from this type of treatment is a big part of the journey. The residual affect of chemo for me has been peripheral neuropathy and fatigue. I am back at work and have two small children and join this forum to find people who I can relate to and share this journey with. Looking forward to chatting with you :)</p>]]>
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        <title>Hi All I'm Julie</title>
        <link>https://forum.ovariancancer.net.au/discussion/9201/hi-all-im-julie</link>
        <pubDate>Sun, 11 Dec 2016 18:49:04 +0000</pubDate>
        <category>Welcome &amp; Orientation</category>
        <dc:creator>Jools67</dc:creator>
        <guid isPermaLink="false">9201@/discussions</guid>
        <description><![CDATA[<p>My first post on here. I am 49 years old and have 2 daughters one who is 23 &amp; a 13 year old. Last year I had a total hysterectomy &amp; debulking of a 12cm ovarian cyst. The diagnosis was stage 3A borderine ovarian cancer. I was hoping that having had this surgery that that would be the end of my journey besides the 3 monthly blood tests &amp; oncologist visits for 2 years and then the yearly checkups. &nbsp;I was floored in september when at my oncologist visit she informed me my CA125 levels had risen and I had been getting a stitch like pain for sometime which I had mentioned back in December (I had a CT scan which was all clear) the Dr&#39;s thought I may have been getting pain from adhesions. But my last CT scan in September showed I had several lesions on my omentum. I am 5 weeks post op and starting to feel back to normal. I&#39;m not 100% clear on my diagnosis but have been informed the cancer has changed to a low grade carcinoma therefore I will be having chemo. I go back to my oncologist soon &amp; also just before Christmas I have an appointment to arrange the chemo treatment. I&#39;m looking forward to a full recovery eventually. Nice to meet you all :)</p><p><br /></p><p>&nbsp;</p>]]>
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        <title>Reply to &quot;her we go again&quot;</title>
        <link>https://forum.ovariancancer.net.au/discussion/8993/reply-to-her-we-go-again</link>
        <pubDate>Wed, 02 Nov 2016 16:04:48 +0000</pubDate>
        <category>Recurrence</category>
        <dc:creator>Helen</dc:creator>
        <guid isPermaLink="false">8993@/discussions</guid>
        <description><![CDATA[<p>Hi Cori,&nbsp; What a pest that it has come back.&nbsp;&nbsp; I had stage 3 ovarian cancer 4 years ago and had a recurrence late last year and it was on the bowel.&nbsp; A cancerous node had attached itself to the outside of the bowel and caused a blockage.&nbsp; I had bowel surgery and had about 10cm&#39;s of my small intestine removed.&nbsp; The surgery was ok and it did take a bit longer to recover, they used the same cut that I had from my previous surgery.&nbsp;&nbsp; I found that getting out of bed and walking around the wards really helped.&nbsp; I didn&#39;t need to have a stoma, which I was pleased about, however I did find that I had very loose bowels for a while after surgery and even now I am careful that I do not have too many fibrous foods, like nuts, spinich, bran, some fruits etc - all the things that you are meant to eat because they are good for you!&nbsp; I find keeping to this not too much fibre diet, a bit frustrating as I prefer to eat healthy to give your immune system a boost.&nbsp; A dietician can advise you as to what is best to eat.&nbsp; I didn&#39;t need to have radiation, however I did have some more chemo.&nbsp; All the best for your surgery and further treatment.&nbsp; Helen</p>]]>
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        <title>Congratulations Nikki</title>
        <link>https://forum.ovariancancer.net.au/discussion/9000/congratulations-nikki</link>
        <pubDate>Thu, 03 Nov 2016 12:00:24 +0000</pubDate>
        <category>Recurrence</category>
        <dc:creator>Karen</dc:creator>
        <guid isPermaLink="false">9000@/discussions</guid>
        <description><![CDATA[<p>That&#39;s fantastic news Nikki!</p><p><br /></p><p>&nbsp;</p><p><br /></p><p>Hopefully all will be well from here on.</p><p><br /></p><p>&nbsp;</p>]]>
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        <title>Hello</title>
        <link>https://forum.ovariancancer.net.au/discussion/7545/hello</link>
        <pubDate>Fri, 15 Jul 2016 05:51:54 +0000</pubDate>
        <category>Welcome &amp; Orientation</category>
        <dc:creator>admin</dc:creator>
        <guid isPermaLink="false">7545@/discussions</guid>
        <description><![CDATA[<p>Hi Iam Jules,</p><p><br /></p><p>Iam 54. When I was 45 I had the fright of my life diagnosed with pre cancerous cells on one of my ovaries. I had the ovary removed asap. I did not need any further Treatment. My other ovary had shrivelled up and was not functioning, so they left that one. I went through the grief Of why was I okay and the other woman were not okay.</p>]]>
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