Support groups — OCA Connect Online Community

Hi I'm Bec!

creativebec — Tue, 18 Feb 2020 01:27:34 +0000

Hello everyone,

My 49 year old sister was diagnosed back in October last year. I just discovered the fact that she has ovarian cancer.

How can I best support her and her husband in this journey? Are there support groups for family?

Thanks

Covid-19

admin — Tue, 17 Mar 2020 23:13:54 +0000

The current COVID-19 situation can create an extra feeling of stress, worry and uncertainty for women living with ovarian cancer and their loved ones. Please be aware while our face-to-face sessions will be on hold until further notice, our tele-support, OCA Connect online community and webinars will continue to run so you can continue to connect with others.

📞 Our Support Team is available on 1300 660 334 or support@ovariancancer.net.au

📖 For general resources, visit: https://ovariancancer.net.au/how-can-we-…/support-resources/

Screening Tests for Ovarian Cancer

Iyana271 — Tue, 25 Feb 2020 08:33:25 +0000

Hi all, I'm just curious that how can we diagnose ovarian cancer at an early stage. What are the early symptoms of ovarian cancer and what are the possible screening tests for ovarian cancer?

Where can we get tested for ovarian cancer in India?

Hope?

ajandkeseeney — Tue, 01 May 2018 15:41:04 +0000

Hci> My name is Karen. I have Clear Cell ovaian cancer Stag11/A. I am trying to find some success stories and not having a lot o luck. I desperately need to know that there is hope. I also had a stroke two weeks after stating chemo and am finding life overwhelming at the momment.

Hi I am Elizabeth Wright and have recently been diagnosed with ovarian cancer

lizandjeffw — Mon, 31 Jul 2017 16:15:43 +0000

Hi my name is Elizabeth but everyone calls me Liz, I have recently been Diagnosed with stage 4 high grade serous ovarian cancer. I would like to find a support group around my area where I can go and talk to people about what is happening to me, so far I have had a fairly unpleasant introduction with the way my medical team are treating me which has only served to make me angry and confused.

Low grade 3c OC

Annette79 — Thu, 29 Mar 2018 22:16:13 +0000

Hi! Interested in connecting with anyone that has been diagnosed with low grade 3c Ovarian Cancer. I have recently had surgery and will have first scan check in June.

support group

kathyorkath — Tue, 03 Jan 2017 20:40:21 +0000

Anyone know how I might go about accessing a face to face support group locally. Particularly 're cancer survivorship stuff?

I'm in central Victoria

Hi all, my name is Kerri

Kerri — Mon, 05 Sep 2016 02:23:42 +0000

I am 60 and was diagnosed with OC in March of 2014 a couples of days before my 58th birthday. I was lucky to have been treated (an continue to be treated) by amazing doctors at North Coast Cancer Institute in Coffs Harbour NSW and John Hunter Private Hospital in Newcastle NSW. I had four rounds of chemo, carboplatin and paclitaxel, prior to surgery where I had a complete hysterectomy, appendectomy and de-bulking. I was lucky that what was thought to be another tumour was an ovarian cyst so that was all removed along with a large fibroid. I recovered well from the surgery and then had another 3 rounds of chemo. When chemo finished I was put on Avastin and finished that in August of 2015. The results of all of this treatment was good with my CA125 results dropping and holding below the normal point. Unfortunately, there has been a recurrence which was discovered March 2016 when I developed ascites and the CA125 was slowly creeping up. I had been told there was a 70% chance of recurrence when I had my surgery so I was not surprised when this happened. I am currently being treated with Caelyx and had also been receiving carboplatin but it was too severe on my blood counts and was withdrawn. I am responding well to the new treatment and my CA125 has dropped by about two thirds since restarting chemo, it is still high, but coming down. My reason for joining this group was to try to set up an online support group for those of us with OC that don't live in metropolitan areas but in the country and remote areas. I have found there are cancer support groups in my area, but not specifically for OC. Sometimes I have felt very isolated when something doesn't make sense and I would have enjoyed having someone who is going through the same problem to talk to, even if it is just to: 'get it off my chest'. If there are others who are interested, please let me know. I wish everyone who is suffering from this disease all the best, my only advice would be to know there are many of us out here going through it too, and support you as much as we can. Take care and, hopefully, keep well. Kerri