My partner has pretty much all the symptoms of ovarian cancer, with the marker going up. We have been to two cancer specialists both saying “they don’t think it’s anything to worry about”

but her symptoms are getting worse and I’m really worried about her. Has anyone else had this happen? And what did you do to get the drs to do something straight away instead of taking their time. I’m worried by the time they realise they were wrong that it will have progressed too far for them to act on it. The only one that knows it’s something serious and is trying to help as much as he can is her gp

These are her symptoms so far:

2 cysts one on each ovary that are not going away and growing

constant severe pelvic and abdominal pain (her gp has her on strong slow release pain killers for pain management)

bloating, indigestion and changed bowl movement

constant nausea

hot flushes/night sweats

constant thick discharge

getting full easily and losing appetite

Any advice would be much appreciated as we are stuck for what to do from here!

Where can we get tested for ovarian cancer in India?

I believe this is the first post for this group. My name is Brianna and currently Im laying down post surgery after having my ovary and fallopian tube removed. As well as the bad stuff in which brought me here to share my thoughts and to remind others they too aren't alone  :) I was diagnosed on 8th of November this year with stage one. Although I have my moments, I remember the gratitude in this. A month prior I had intense pain on my right side near my ovary nothing was subsiding the pain after pain killers. I realised this was my ovaries deep down - previously I was told  two years earlier I had PCOS which was found after a 9 month bleed (sometimes heavy, sometimes light) my periods were erratic ever since they began at 15 unless on the pill.

For me I went off the pill due to the emotional side effects. I had tried many. Although my body seemed to regulate in the last year on it's own.  I still would have problems with my cycle being on and off or the last of it in september was a double period in space of 3 weeks. I knew something wasn't right. A relief to of had the first lot of surgery because a part of me did realise I could of had this tumor for some time without knowing as I was never in any intense pain previously to warrant further ultra sounds / surgery etc (this was whilst I lived in the UK returned back to Oz April 2017)

I am waiting my results all going well I hope to keep my other ovary as I've not had children. For someone like me who has always travelled and chased her goals - this part is what has caused the most emotional pain. To fear the outcome or even to fear the changes in my body. I never thought I would get to 30 and have this. I always thought it was when you're 'older'. But like many of us that I am sure are on here we have learn't to except what life has thrown at us. Finding comfort in expression and our alone moments just like now. For me personally it's harder to be around loved ones and be close to people. I am usually the anchor or helper you could say. That's where my aggression comes in and I tend to push people away.

I try to laugh and tell people it's merely a clitch in the matrix. I'd like to remind myself of my humour and also my compassion. Nature, art and writing are my biggest teachers through this. My voice still means something even though I feel held back so I hope this offers some love and reminder we're all in this together x <3

I'm a newbie. My name's Julia. I am 43 and have 5 children ranging from 23 to 11. I was diagnosed with stage 4  two months ago. It's been a bit of a steamtrain. I was admitted to hospital with 5 litres of fluid and zero aeration in my right lung. An ovarian cancer cell was found in my lung fluid tested at John Hunter. After the chest drain, I was referred to oncology as an outpatient.

The cancer is in my ovaries, uterus, fallopian tube, liver, lymph nodes and lung. Now possibly also in my breast. Just had suspicious mammogram. Awaiting results of MRI. I just found out I have the BRCA 1 gene. I am having chemo to get rid of the cancer and fluid in my lung so that I am able to have surgery. The doctor says I must have zero fluid before I am able to have surgery. I have also been referred for a double mastectomy to the breast surgeon but really it's not as much of a priority as surgery on the primary cancer as I already have stage 4.

I thought I had ovarian cancer (I had all the symptoms) and I thought I had ruled it out 2 years ago. I'm obviously not meant to find out until now, when I am at stage 4. There will be a higher reason for that. I think it may be to help people. Stage 4 packs a harder punch, somehow.

I am doing really well and just taking one blow at a time. I am happy. Sometimes I get wobbly. A couple of times I have been terrified. I came on here to connect and also find out a bit more about what to expect in terms of surgery (I know nothing) and also what the doctors need to see before they give you the all clear initially. Thanks for any light you can shed. I'm new to all this. Xx

I just wanted to introduce myself and tell and little bit of my story.

I was diagnosed in 2007 with stage 3 ovarian cancer and had a 15cm tumor removed with my ovary and tube. I was 22 was i was diagnosed. Within 12months i had 2 cycles of chemo and than the other overy removed. Which meant i was 23 going through menopause. Unfortunately for me it jas spread to my lymph nodes. I have had several cycles of chemo including one that I have a severe allergic reaction too.

Today I am on debrafnib and have been for nearly 3yrs all up. I was the first ovarian patient to be put on a trail for the melanoma cancer trail..It has kept it at bay.

I have always worked throughout all of this and will continue too. As i wont let cancer stop me from living my life.